Today I went to the hospital to pick up my test results.
I opened the blood tests first because I suspected there wouldn’t be much to be afraid of on that front. And as I suspected, everything was normal. Great.
So off to the MRI results. I started reading, I read again, and I reread, in confusion, amazement… in disbelief. And then I was completely stoked. There are no new lesions. None. Zero. Nothing. Nada. Not in the brain, not in the spinal cord. And nothing lights up after contrast, which means the old lesions aren’t active.
I was thinking how come…? I had one of the most difficult, most stressful years of my life. I’ve been off any meds for over half a year. I was worse off with the meds? What does this even mean? Was it the going back to yoga classes? Was it the trying to stress less at work? Was it the extra vitamin D I got this summer by spending more time at the beach?
But then I thought no more. I take it as it is. I’m not asking any questions until I see a doctor.
I called my mother. She said it’s just my sheer strength. That I’m going to be OK. And I cried tears of joy for the first time in years.
2 weeks in and looks like I’m still trying to get the hang of it.
So far the most obvious side effects I’ve dealt with were headaches, flushing and itching.
The headaches used to appear 5 to 10 minutes after taking the capsule, so they were very easy to link to the medication. Continue reading
At the start of every school year, the place where I used to have my contemporary dance classes lets you try each of the classes and each of the levels once for free. I stopped dancing in July 2013 when I was diagnosed with endometriosis and told I had to have surgery. The surgery turned out not be necessary but then I went back to college and stayed away from dancing in order not to overdo it and have an MS relapse. With my masters starting two weeks from now looks like it’ll be another two years before I can go back to dancing. But that didn’t stop me from trying one of the classes for free tonight. I thought I’d be completely out of shape, I thought I’d forgotten everything, but the truth is the body has a memory of its own. For one hour today I felt really really happy, like I haven’t been in a long time. Like this is what I was born to do if MS hadn’t got in the way. I felt completely and positively alive. And I hope I can carry this feeling with me for the times to come.
My father thinks I was being pessimistic about those side effects Tecfidera is known for. I don’t think so. For starters, my father didn’t even know what kind of side effects he was talking about until I enlightened him. Continue reading
Expect to see me crying over the results in a week or so.
One of the reasons I planned to start Tecfidera on a Saturday was the fear of being overcome by side effects at work. The doctor, however, was so adamant that I should start right away that I did. And so the side effects came. At work. And oh they were embarrassing. Continue reading
If you’ve been reading me for some time, you can finally open the champagne bottle. After I-don’t-even-know-how-many-months waiting, at last I’m starting a new medication. Tecfidera is here. It looks like this: Continue reading