Letting our emotions speak

I went to see the movie Inside Out today. It’s entertaining, fun and light – nothing too deep here, or even 100% accurate, but let’s not forget it’s a movie and not a scientific paper. More importantly – and not wanting to give away too much here – the movie is also a reminder that all our emotions play an important role in shaping who we are and keeping us safe from danger. Often we want to shut out the most unpleasant ones – sadness, fear, anger – but they are needed, and nothing else would exist without them. Continue reading

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Waiting, waiting, and it’s doing me in

As I keep waiting, wondering what medication I will be taking in the future, what side effects it will give me and if it will do anything to slow my MS, life hasn’t stopped. I keep going to work everyday, to my weekly yoga class, I keep going out occasionally with friends, I keep spring cleaning even though it’s summer now and wondering how to give my apartment some final touches (it’ll be four years on Tuesday since I moved), and I generally keep doing what I normally do. And I keep waiting. Continue reading

Any given shelter

We all have experienced, at least once in our lives, that moment when we wished we could go back. But we know we can’t – it’s impossible – so we grow out of that feeling, reason we weren’t as wise back then, search for the details that tell us things weren’t even that good, all in order to quiet that longing. We say, “My life is actually better now, you know, despite.” But with chronic illness? I’m not sure the process goes like this. Continue reading

Some thoughts on World MS Day

Another World MS Day has come and gone. This year the theme was Access and a lot of initiatives were organized around it. On the official website there were cards and posters we could print or send to thank the people who are breaking down the barriers to access – the people who are making it easier for us to live with MS. The hashtag #StrongerthanMS was the motto, as in together we’re stronger than MS. Social media was flooded with messages. But as I went through hundreds of posts on Facebook and Twitter, I started feeling a bit concerned. Continue reading