Santa Apolónia*

Oblivion is a lure
Warm and painted in azure
But I want you to trace
The reminiscences of a face
Of stone, crying, so still
Adulterous to your will

Gray is as cold as ice
You’ve burnt it twice
On the morning ships were gone
And the world was forever dawn

*Wrote this in 2001 about saying goodbye to someone I thought I was never going to see again. As I’m trying to say goodbye in my mind to someone who probably doesn’t even remember me anymore, as I’m trying to say goodbye to 2014, and as I’m trying to say goodbye to a version of me that keeps beating herself up for not living up to people’s ideas of what I should be like, this poem came back to me, by heart. It still makes sense to me after all these years…

Work vs Chronic illness

There’s something wrong with this title. There shouldn’t be a “vs” there. It shouldn’t be a war. But most of the times it is.

Unlike many people I know who suffer from chronic illnesses, I still work full time. And I don’t complain about that. I wish I will be able to work full time for many many years. I wish to have a life that feels as normal as possible. Then why do I feel like quitting so often? Continue reading

Inspiration

2015 hasn’t really kicked off the best way, with me catching a cold that put everything I have to do this month on hold, and then stressing and freaking out because time is running out. But since I don’t want my blog to turn into a wailing wall, I thought I’d share some videos that have inspired me lately. Continue reading

New year solutions

fotografiaJust came back from the hospital where I picked up hopefully my last Copaxone box with pre-filled syringes. They gave me a new container for needle disposal and when I got home I noticed the lid wasn’t yet on. All I had to do was place the red lid on the container and push it down so it locked, but I have been feeling my muscles weak lately and I didn’t have enough strength in my hands to do it.

So I just put it on the floor and sat on it.

There, I fixed it. 😀

Happy new year, everyone! ❤